Coming home

This is long waited news, Rach is coming home. Yeah! this will do so much for Rach's mental well being. Now that I have time to ponder it, it will do well for her digestive system (and ours) for not having to endure another day of hospital food. :)

I do want to make this clear, Rach is still battling a very distructive disease and just because she is coming home right now has more to do with protecting her from the hospital itself. When you hang out in the hospital for seven weeks, you hear horror stories of all the nasty bacterias and fungus that you can get there. The reality, Rach is being sent home because those nasty bugs are very real and very distructive to healthy people, let alone people who's immune system is being suppressed. We'll stick with the home grown bugs.

We finally were able to get an update from her neurologist. He said that Susac's isn't like having MS at all, in some ways. While the symptoms can seem similar, they are completely different in what is happening in her brain. As her neurologist explained, "it's as if Rachael is having "micro-strokes" in the smallest blood vessels in her brain." The similarity is they are both considered auto-immune diseases in origin.

I was talking to a friend today and he reminded me, "What did we pray for in the beginning?" then said, "We prayed the lesions would subside and they have." Then he said, "Then we prayed that the progression would stop." Guess what gang? he's right, the progression, as we understood progressive diseases has stopped. We've ended up with something that has an entirely different outcome (the rehab doctor reminded today that her original prognosis was "terminal", for some reason he wants to keep reminding us of that). The fact is, we got an entirely different diagnosis, something that does stop. Isn't it a good thing that God doesn't always listen to the doctors? If we had listened to the rehab doctors, we would have been planning for a funeral.